Dear Samuel,
They say that patience is a virtue......
We are a generation of "instant gratification". Movies and TV shows are OnDemand, answers to trivia questions are found instantly with our phones, 1-click ordering on Amazon. I think because your Mom and I have been conditioned to this in our everyday lives makes this seem all the more difficult. We just want this to be done. For you to be healthy. For you to come home.
With that said, you have not ceased to amaze us with your incredible strength and will. It's that strength and will that keep us going; day by day, hour by hour, minute by minute.
Today was a a "milestone" day. Your vent tube was extubated and replaced with a CPAP machine. Just so you know, your tube was gross.....It's no wonder there was some sort of bacteria growing in there. It was a weird shade of yellow when they pulled it out. This was also the first time your mom got to see you without any vent in your mouth (and I snapped a picture):
They did try using the lowest level CPAP machine (only gives off oxygen) but you did not react well to it and had a lot of de-sats. They switched you over to a CPAP machine that gives you both oxygen and respirations, so that it helps you to remember to take breaths on your own. With this machine, you seem to be doing "OK". We are still seeing some de-sats, but your mom and I think that there weren't more tonight than there was last night. Either way, the staff tells us that it's a win just to have the tube out! There is still a chance that you will need the tube to be put back (a different one obviously) but there will be a lot of variables that go into this decision (blood gases, skin color, etc.).
Blood Sugar has been down today/tonight as well (Last reading tonight was ~90). Your mom and I think this is related to getting your vent tube out and whatever bacteria/infection was in there (But we aren't doctors...we only play ones on TV). We're hopeful this will be the cure to chasing your blood sugar numbers.
They say that patience is a virtue......
We are a generation of "instant gratification". Movies and TV shows are OnDemand, answers to trivia questions are found instantly with our phones, 1-click ordering on Amazon. I think because your Mom and I have been conditioned to this in our everyday lives makes this seem all the more difficult. We just want this to be done. For you to be healthy. For you to come home.
With that said, you have not ceased to amaze us with your incredible strength and will. It's that strength and will that keep us going; day by day, hour by hour, minute by minute.
Today was a a "milestone" day. Your vent tube was extubated and replaced with a CPAP machine. Just so you know, your tube was gross.....It's no wonder there was some sort of bacteria growing in there. It was a weird shade of yellow when they pulled it out. This was also the first time your mom got to see you without any vent in your mouth (and I snapped a picture):
They did try using the lowest level CPAP machine (only gives off oxygen) but you did not react well to it and had a lot of de-sats. They switched you over to a CPAP machine that gives you both oxygen and respirations, so that it helps you to remember to take breaths on your own. With this machine, you seem to be doing "OK". We are still seeing some de-sats, but your mom and I think that there weren't more tonight than there was last night. Either way, the staff tells us that it's a win just to have the tube out! There is still a chance that you will need the tube to be put back (a different one obviously) but there will be a lot of variables that go into this decision (blood gases, skin color, etc.).
Blood Sugar has been down today/tonight as well (Last reading tonight was ~90). Your mom and I think this is related to getting your vent tube out and whatever bacteria/infection was in there (But we aren't doctors...we only play ones on TV). We're hopeful this will be the cure to chasing your blood sugar numbers.
Patience. A lesson you are teaching us. One of many, I'm sure, you will teach us. Hopefully, we can repay the favor.
Stay strong little one.
Love,
Mom and Dad
Dear Samuel,
ReplyDeleteMay Jesus fill your little lungs with His breath and bring healing to every ounce of your body.Praying that God will wrap His loving arms around your whole family and fill them each day with peace,hope and joyfilled miracles.