Showing posts with label care conference. Show all posts
Showing posts with label care conference. Show all posts

Thursday, February 12, 2015

Proving MD's Wrong - Since 2014

Dear Samuel,

Sorry for not writing the past few days....life has been a little crazy.

Well, would you expect any less? You keep impressing not only the doctors and nurses but your Mom and I. This week has been another memorable one.

For your 2:00 a.m. feedings the past two mornings, you have taken them by BOTTLE. Yes, you read that right....BOTTLE. It seems like you have picked this whole eating thing up very quickly. I think a lot of it has to do with being moved into the crib. It's A LOT easier to get you in and out and because of that the nurses or Mom and I are able to hold you for your feedings. Now that we are able to hold you, we give you a nook to suck on during the feeding, a bottle, or you get Mom.



The other night when Mom was holding during your feeding, she let you try to latch on and you did for about 5 minutes! She said you got tuckered out pretty quick but it's just incredible that you were able to latch on and eat!

We had another care conference with your doctor/nurse practitioner last night and they could not be more impressed. It was a pretty short meeting because you are doing all the heavy lifting. They told us that every time they don't think you are ready for something, you do it and do it well. When you had your breathing tube removed, they thought you would need another one (Not so much)....When you had clothes put on for the first time and moved out of your heated isolate, they thought you would have to be put back (Nope).....When you weren't supposed to stay in your crib and be moved back to an enclosed isolate (Thank You, may I have another?).

Now, we only have a few more hurdles. I'm not going to lie though, they aren't going to be easy. It all boils down to two things: Oxygen and Feedings. The Feedings might not prove to be such a hill to climb, since you are beginning to take bottles and latching with Mom. Before you come home, you need to take 50% of your feedings by mouth for 2 days straight (if we choose to leave the NG tube in) OR you need to take 100% of your feedings by mouth for 2 full days if we want to discharge with no feeding tube. You also need to be completely OFF of oxygen before you can come home. This one may prove to be the challenging one.....but you know what? Your doctors think this will be difficult for you. You know what to do.

You keep making gains in the weight department too. As of tonight you are 3 pounds 7.7 ounces! You are now 16 1/2 inches too.

For the first time it feels like there is a light at the end of this long tunnel. It's been an incredible journey so far and will continue to be; I'm sure of it.

Love you pal,
Mom and Dad

Thursday, January 8, 2015

A Conference of Caring

Dear Samuel,

Not much change again today.

We had your first ever Care Conference today with your doctor. Here is the Reader's Digest version:

  • You are doing awesome for being so little and having RSV. 
  • Only about two things that the staff is paying attention to (Well not really, but two BIG things):
    • Weight - You need to get bigger!! The goal is about 20 to 30 grams a day. The bigger you get, the more we can turn down the humidity and temperature in your isolette and put clothes on you finally! This way you can show us how well you can regulate your own body temperature, meaning you can be switched over to a crib; meaning we can hold you whenever we want when we are in the NICU
    • Respiration - The goal is to wean you off of your vent that gives you respirations (There's a highly technical term for this that is escaping me right now) and eventually move you to a different contraption that would give you JUST O2. After that, we want to wean you off of the oxygen and have you do this whole breathing thing on your own. Once that happens in conjunction with your weight we can get you in a crib and ultimately take you home (There's obviously a lot more to it than that before we can take you home, but I said it's the Reader's Digest version). 
Your O2 settings were down again today! This was the first time since you were born that you were in the 20%'s....You were set as low as 27% today, and were sitting around 30% for most of the day/night. We are moving in the right direction, pal. 

As of this post, your weigh-in hasn't happened. Hoping we will be pleasantly surprised tomorrow and can have your 2 pound party. 

I'm sure I may have forgotten something from the care conference, but your Mom will remind me and I can edit the post. That's why we keep her around, she lets us know when we forget to do something ;) 

Love,
Mom and Dad

P.S. - Seems you are becoming quite the escape artist lately. Today's picture shows how momma found you when she came to see you today. You are doing really well without the chin strap when you are on your tummy and sides, but when you are on your back you tend to let your mother hang open. As they keep weaning down the pressure on your cpap you should be able to wear your strap less and less.


Wednesday, January 7, 2015

Chin Strap. Optional.

Dear Samuel,

Another good day with no changes.


Mom got to hold you for 2 1/2 hours today. You didn't have your chin strap on the entire time! When I got there this afternoon, you didn't have it on either! Your O2 levels were turned up a bit higher (Around 48%-50%), because you didn't have it but I don't care....I'm sure it's not very comfy. 

Weigh-in tonight was a tad bit down. 1 pound 15.4 ounces (down .4 ounces). 

Our first care conference is tomorrow with your doctor. Hoping we will find out what our next steps are! 

See you tomorrow. 

Love, 
Mom and Dad

Monday, January 5, 2015

Quick Update

Dear Samuel,

Another good day.....So, I'll make this short.

Your weight went down an ounce to 1 pound 13.6 ounces but you are getting longer. You're up to 13.25 inches long.

Mom got to come down in the morning and hold you for your feeding. I went back to work today, so I came down after Isaac went to bed. Tomorrow we have our first care conference with your doctor to talk about where we have been, where we are and where we need to go.

Your O2 levels were at 30%-40% all day. Hopefully we can keep bringing those numbers down (Magic Number is 21%).

You also got your Hep. B shot today, as you are 4 weeks old!!

Hopefully we can get these good times rolling....

Love,
Mom and Dad
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